What is PNES? My condition

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What is PNES?

These are the seizures I have, as such they are not the true seizures as the electrical discharges in my brain are almost normal with an abnormal theta wave pattern but I don’t lose control of my bladder but I do convulse and do lose consciousness. And I have Chronic Post Traumatic Atypical Migraines with Syncope, which means I always have a headache and that leads to me passing out and convulsing. A lot of the drugs they put me on trying to treat these over the years has taken a lot out of me, and given me a few more problems since they did nothing for the condition, except add more problems..

I’ll cover these two videos first. These two videos show what a 6 minute and a 10 minute seizure look like. I have had this condition for 29 years without any relief or without them stopping. Condition was brought on by a massive heat stroke and a car accident 8 months later. I have had two major car accidents, a massive heat stroke and numerous concussions in my life, leaving me in this state. I live with it the best I can doing what I can do.

 

http://www.youtube.com/watch?v=tvzmwUIdUGI

2003-08-22 Attack. A six minute seizure.

 

http://www.youtube.com/watch?v=lHXMJU-EH6g

2003-09-01 Attack, A ten minute seizure.

They can last from 1 minute in length to 9 hours at times. I was in the hospital from having fallen in the shower and smacked my head on the tub and was having a seizure for 2 ½ hours, they took me to the hospital where I had 4 more seizure episodes within the time they were x-raying me and doing a CT scan of my head.. I was even told during one of these episodes in the hospital to stop having the seizure so they could get the x-ray done. Does that sound as stupid as it did to me? Stop having something I can do nothing about. You wonder why I never want to see another doctor or anyone connected.

I have been told constantly that I am faking it. Why in bloody hell would I fake these things for 29 years? They have destroyed my life and left me almost a vegetable at times, paralyzing me and having strokes and maybe even what was described as a heart attack during a really bad one. That one was three hours long and I almost didn’t make it through that one. And because I’m not in a halo, in a wheelchair, and still able to speak somewhat coherently with only a slight impediment, I get all this shit about how I’m suppose to be normal, well I am normal for me. I can’t conform to your fucked up world and I’m doing the best I can with everything I’ve been through.

And I have to worry that someone was traumatized by reading a bloody readers digest? Give me a break. I am tired of being a pawn in this game of life. I have a mind and I can do some things for which I am truly grateful. I always try and do the best I can with what I have. I would like to have more so I could do more but since it hasn’t happened yet, I’ll continue to do what I can. I just wanted to share with you a little of what I go through every time I say I had a seizure today and try and downplay how really bad it is. As soon as I get a place to put up all the photos and such I have I’ll show what they did to me and my hand with medications that went ballistic in my system.

 

https://youtu.be/y9Zi85A35d4

Below are some links to my condition, to be more accurate I have Paroxysmal nonepileptic episodes more then Psychogenic ones. The big difference is these stem from accidents and organic factors not from psychological conditions. Hope this helps some of you understand more my condition.

PNES links below..

Nov 1, 2007 – Psychogenic nonepileptic seizures (PNES) are an uncomfortable topic, one that is difficult for both patients and healthcare professionals to discuss and treat. Yet it is estimated that PNES are diagnosed in 20 to 30% of patients seen at epilepsy centers for intractable seizures.

Psychogenic Nonepileptic Seizures: Background, Pathophysiology …

https://emedicine.medscape.com/article/1184694-overview

Jun 15, 2017 – Psychogenic nonepileptic seizures (PNES), or pseudoseizures are paroxysmal episodes that resemble and are often misdiagnosed as epileptic seizures; however, PNES are psychological (i.e., emotional, stress-related) in origin. Paroxysmal nonepileptic episodes can be either organic or psychogenic.

Psychogenic non-epileptic seizure – Wikipedia

https://en.wikipedia.org/wiki/Psychogenic_non-epileptic_seizure

Psychogenic non-epileptic seizures (PNES) are events resembling an epileptic seizure, but without the characteristic electrical discharges associated with epilepsy. They are of psychological origin, and are one type of non-epileptic seizure mimics.

‎Risk factors · ‎Diagnosis · ‎Treatment · ‎Prognosis

Treatment and Outcome of Psychogenic Nonepileptic Seizures

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC321215/

by RP Lesser – ‎2003 – ‎Cited by 57 – ‎Related articles

Similarly, a second study demonstrated that patients without rigidity, shaking, ictal incontinence, tongue biting, episodes of PNES status, or admissions to an …

‎Introduction · ‎The Complex Etiology of … · ‎Presenting the Diagnosis to …

Psychogenic Non-Epileptic Seizures (PNES) – Epilepsy Ontario

epilepsyontario.org/about-epilepsy/types-of-seizures/psychogenic-seizures/

Psychogenic Non-Epileptic Seizures (PNES). (an older term, pseudo-seizures, is no longer used). Psychogenic seizures are not due to epilepsy. Psychogenic …

PNES, Or Psychogenic Non-Epileptic Seizure Disorder, Isn’t Epilepsy …

https://www.npr.org/…/her-seizures-looked-like-epilepsy-but-her-brain-looked-fine

Feb 1, 2018 – PNES is a surprisingly common disorder, says John Stern, who directs the epilepsy clinical program at the University of California, Los Angeles.

Psychogenic Non-Epileptic Seizures: Clinical Issues for Psychiatrists …

http://www.psychiatrictimes.com/…/psychogenic-non-epileptic-seizures-clinical-issues-psych…

Mar 31, 2017 – Although psychogenic non-epileptic seizures (PNES) are events that appear to be similar to seizures, they are not caused by abnormal …

Symptoms That Mimic Epilepsy LInked to Stress, Poor Coping Skills …

https://www.hopkinsmedicine.org/…/symptoms_that_mimic_epilepsy_linked_to_stress…

Apr 10, 2012 – In the past, behaviors like PNES were called “hysteria.” Now they are often considered by psychiatrists as part of a “conversion” disorder, …

Seizure Disorder: What You Should Know About a PNES Diagnosis …

https://themighty.com/…/seizure-disorder-what-you-should-know-about-a-pnes-diagn…

Oct 18, 2016 – A writer lists the seven things she wants people to know about a psychogenic nonepileptic seizures (PNES) diagnosis, and what it’s like living …

Psychological Non Epileptic Seizures

www.nonepilepticseizures.com/

Psychogenic non-epileptic seizures (PNES) present with a sudden change in behavior, perception, thinking, or sensation that closely resemble an epileptic …

You get the hint, this is what I live with every day, so smile and have a great day..

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