What is PNES? My condition
What is PNES?
These are the seizures I have, as such they are not the true seizures as the electrical discharges in my brain are almost normal with an abnormal theta wave pattern but I don’t lose control of my bladder but I do convulse and do lose consciousness. And I have Chronic Post Traumatic Atypical Migraines with Syncope, which means I always have a headache and that leads to me passing out and convulsing. A lot of the drugs they put me on trying to treat these over the years has taken a lot out of me, and given me a few more problems since they did nothing for the condition, except add more problems..
I’ll cover these two videos first. These two videos show what a 6 minute and a 10 minute seizure look like. I have had this condition for 29 years without any relief or without them stopping. Condition was brought on by a massive heat stroke and a car accident 8 months later. I have had two major car accidents, a massive heat stroke and numerous concussions in my life, leaving me in this state. I live with it the best I can doing what I can do.
2003-08-22 Attack. A six minute seizure.
2003-09-01 Attack, A ten minute seizure.
They can last from 1 minute in length to 9 hours at times. I was in the hospital from having fallen in the shower and smacked my head on the tub and was having a seizure for 2 ½ hours, they took me to the hospital where I had 4 more seizure episodes within the time they were x-raying me and doing a CT scan of my head.. I was even told during one of these episodes in the hospital to stop having the seizure so they could get the x-ray done. Does that sound as stupid as it did to me? Stop having something I can do nothing about. You wonder why I never want to see another doctor or anyone connected.
I have been told constantly that I am faking it. Why in bloody hell would I fake these things for 29 years? They have destroyed my life and left me almost a vegetable at times, paralyzing me and having strokes and maybe even what was described as a heart attack during a really bad one. That one was three hours long and I almost didn’t make it through that one. And because I’m not in a halo, in a wheelchair, and still able to speak somewhat coherently with only a slight impediment, I get all this shit about how I’m suppose to be normal, well I am normal for me. I can’t conform to your fucked up world and I’m doing the best I can with everything I’ve been through.
And I have to worry that someone was traumatized by reading a bloody readers digest? Give me a break. I am tired of being a pawn in this game of life. I have a mind and I can do some things for which I am truly grateful. I always try and do the best I can with what I have. I would like to have more so I could do more but since it hasn’t happened yet, I’ll continue to do what I can. I just wanted to share with you a little of what I go through every time I say I had a seizure today and try and downplay how really bad it is. As soon as I get a place to put up all the photos and such I have I’ll show what they did to me and my hand with medications that went ballistic in my system.
Below are some links to my condition, to be more accurate I have Paroxysmal nonepileptic episodes more then Psychogenic ones. The big difference is these stem from accidents and organic factors not from psychological conditions. Hope this helps some of you understand more my condition.
PNES links below..
Psychogenic nonepileptic seizures (PNES) are an uncomfortable topic, one that is difficult for both patients and healthcare professionals to discuss and treat. Yet it is estimated that PNES are diagnosed in 20 to 30% of patients seen at epilepsy centers for intractable seizures.Nov 1, 2007
People also ask
What are the symptoms of Pseudoseizures?
Pseudoseizures have a gradual onset, whereas epileptic seizures tend to start abruptly. Symptoms at the onset of pseudoseizures that can be confused with seizure auras include palpitations, choking, numbness, pain and visual hallucinations.May 15, 1998
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What is the cause of Pseudoseizures?
Epilepsy disrupts the nerve activity in the brain, causing seizures. You can tell a seizure is epileptic if brain electricity monitoring during the event shows neurons misfiring. Nonepileptic seizures are caused by something other than epilepsy — typically by psychological conditions.Oct 17, 2017
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What is a pseudo seizures?
Psychogenic nonepileptic seizures (PNES), or pseudoseizures are paroxysmal episodes that resemble and are often misdiagnosed as epileptic seizures; however, PNES are psychological (i.e., emotional, stress-related) in origin. Paroxysmal nonepileptic episodes can be either organic or psychogenic.Jun 15, 2017
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What are non epileptic seizures caused by?
A person can have both nonepileptic and epileptic seizures. NES are usually related to a mental health problem. The physical symptoms may be caused by emotional conflicts or stress. One example of NES is psychogenic seizures, sometimes called pseudoseizures.
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Do seizure patients qualify for disability?
For some, epilepsy is controlled by medications. For others though, uncontrolled seizures wreak havoc on all aspects of life, including the ability to work and earn a living. If you suffer from uncontrolled seizures, you may be able to qualify for disability benefits from the Social Security Administration (SSA).
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Can you have a seizure from anxiety?
What is the symptoms of Pseudoseizures?
Pseudoseizures frequently present stereotyped motor phenomena, such as jerking and shaking, but in patterns that differ from those seen with neurologic seizures. Goal-directed behaviors, expressions of anger or violence, or uncoordinated flailing movements of the extremities are likely signs of pseudoseizures.
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What is a false seizure?
A Grand-Mal or Tonic-Clonic seizure often makes the person fall, get stiff, and then shake. There are also conditions that look like seizures but really aren’t seizures at all. They are called pseudoseizures- literally, false seizures. A false seizure is considered a psychological condition.
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How are seizures triggered?
What causes psychogenic seizures?
The Truth about Psychogenic Nonepileptic Seizures. PNES are attacks that may look like epileptic seizures, but are not caused by abnormal brain electrical discharges. Sometimes a specific traumatic event can be identified in many people with PNES.Nov 1, 2007
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Can seizures be brought on by stress?
How long is too long for a seizure?
Most seizures last only a few seconds, or at the most, a few minutes. If a seizure lasts more than 5 minutes that person is said to be entering a state known as status epilectus and needs medical attention.
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Is a seizure a physical disability?
Is epilepsy serious?
What are the symptoms of conversion disorder?
What is a Pseudoseizure disorder?
What is a psychogenic non epileptic seizure?
What does seizures do to you?
Can you have a seizure for 30 minutes?
Seizures that last longer than 30 minutes can cause damage to the brain, or even death. This is also the case for a cluster of shorter seizures that last for 30 minutes or more. In both cases, this is known as status epilepticus.
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How do you feel after having a seizure?
Immediately after a seizure, during the Post-ictal phase most people take only a short time to become fully aware and back to normal. It is quite common for the person to feel confused after a seizure. Other common symptoms can include headaches, slurred speech, feeling sick, mood changes and tiredness.
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Do seizures hurt the brain?
Can you remember when you have a seizure?
Sometimes they can talk quite normally to other people during the seizure. And they can usually remember exactly what happened to them while it was going on. However, simple partial seizures can affect movement, emotion, sensations and feelings in unusual and sometimes even frightening ways.May 2, 2017
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What are the side effects of having a seizure?
Can you talk after a seizure?
Can a person have a seizure in their sleep?
For some people, sleep is disturbed not by dreams but by seizures. You can have a seizure while you sleep with any form of epilepsy. But with certain types of epilepsy, seizures only occur during sleep. The cells in your brain communicate to your muscles, nerves, and other areas of your brain via electrical signals.Aug 30, 2016
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Do seizures affect memory?
Can severe dehydration cause a seizures?
How do you stop a seizure?
What causes abnormal electrical disturbances in the brain?
Can you have memory loss after a seizure?
What happens to your body when you have a seizure?
What causes seizures in adults with no history?
Do seizures damage the brain?
What does a seizure do to your body?
Do seizures hurt the person?
Can seizures lead to death?
What foods can trigger seizures?
What foods can prevent seizures?
Nov 1, 2007 – Psychogenic nonepileptic seizures (PNES) are an uncomfortable topic, one that is difficult for both patients and healthcare professionals to discuss and treat. Yet it is estimated that PNES are diagnosed in 20 to 30% of patients seen at epilepsy centers for intractable seizures.
Jun 15, 2017 – Psychogenic nonepileptic seizures (PNES), or pseudoseizures are paroxysmal episodes that resemble and are often misdiagnosed as epileptic seizures; however, PNES are psychological (i.e., emotional, stress-related) in origin. Paroxysmal nonepileptic episodes can be either organic or psychogenic.
Psychogenic non-epileptic seizures (PNES) are events resembling an epileptic seizure, but without the characteristic electrical discharges associated with epilepsy. They are of psychological origin, and are one type of non-epileptic seizure mimics.
Similarly, a second study demonstrated that patients without rigidity, shaking, ictal incontinence, tongue biting, episodes of PNES status, or admissions to an …
Psychogenic Non-Epileptic Seizures (PNES). (an older term, pseudo-seizures, is no longer used). Psychogenic seizures are not due to epilepsy. Psychogenic …
Feb 1, 2018 – PNES is a surprisingly common disorder, says John Stern, who directs the epilepsy clinical program at the University of California, Los Angeles.
Mar 31, 2017 – Although psychogenic non-epileptic seizures (PNES) are events that appear to be similar to seizures, they are not caused by abnormal …
Apr 10, 2012 – In the past, behaviors like PNES were called “hysteria.” Now they are often considered by psychiatrists as part of a “conversion” disorder, …
Oct 18, 2016 – A writer lists the seven things she wants people to know about a psychogenic nonepileptic seizures (PNES) diagnosis, and what it’s like living …
Psychogenic non-epileptic seizures (PNES) present with a sudden change in behavior, perception, thinking, or sensation that closely resemble an epileptic …
You get the hint, this is what I live with every day, so smile and have a great day..